Today is a really great day. Instead of updating my blog from a hospital bed in Buffalo, I am writing from my living room sofa in Vestal. I've been discharged from Roswell; I am home at Earl Road!
I got the first inkling I might be going home yesterday, when I received the results of my routine 5 a.m. bloodwork at about breakfast time. White cells were a whopping .92! Now, in the scheme of things, a .92 count is pretty pitiful (healthy counts are 3 or higher at least) but when 3 days before your white count was .19, the near inverse is worthy of dancing a jig. And no, I didn't dance a jig, but I sure felt like it.
Dr. Wang came to see me, and she was impressed. Not too impressed to cancel the lumbar puncture I had scheduled for that day --she was still worried about my blurry vision-- but impressed enough to tell me that if I still felt well in the morning, I could go home.
The lumbar puncture, this time done in radiology with real live medical equipment and a real doctor, went seamlessly and quickly (and came out negative for lukemia), and I went to bed last night confident I would go home. After meeting with half a dozen people--pharmacist, dr. social worker, master plumber (no, not really a master plumber) I was given my discharge papers and Di drove me home. She had gone into work for a few hours, then zipped up to buffalo to pick me up.
I am not home for good however. Monday I head back to Buffalo for the day, as I have a clinic appointment with Dr. Baer. Bone marrow biopsy. Ugh. Good news is we'll come back that night and I'll be able to stay in bingoland till the 19th. Then I go back to Buffalo and move into a new "off campus" residence. I'll start my second round of chemo on an outpatient basis bright and early the next day.
A note about visitors while I'm home. I would really like to see everyone, but I have a problem. Though my counts are looking good for me, compared to every other healthty person in Broome County I have a sickly and weak immune system which would hospitalize any of the rest of you. So, I really have to limit visitors to family, and even they can't come if they've been exposed to a cold or disease within the last few weeks. It's not something I like, but it's really a matter of life and death. Any infection I get will delay the progress of my chemotherapy, and that's just not worth the risk.
I'd like to thank everyone who visited, sent cards, letters, gifts and emails while I was at Roswell. You have no idea how great this made me feel, and helped to pass the time. All the nurses and doctors really thought I was something special because of all the evidence of friends and family hanging on the wall. And I felt like something special, too. I am grateful and humbled by the response, and I consider all of you true friends for your support during this difficult time. It really means more than you can possibly imagine!
Thanks again for everything.
Matt Kensey
Wednesday, August 09, 2006
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1 comment:
Welcome home Matt. SO glad to hear this news.
A beautiful weekend awaits. That should lift your spirits (and hopefully that white blood cell count, too).
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